Dear Kit, your video is on a Dutch site. I am a 25 years old women from the Netherlands and watched your video with tears in my eyes! I have since 2 years CIDP a brother of GBS. I got CIDP when I was pregnant of my first child. I could not wolk anymore. It was a very hard time with a new born. Now my son is 1 year old and I am wolking again. I could not stop crying watching your video because I saw a very brave and strong man fighting for his family! I wisch you and your family lots of love and a healty future!

Best regards,
Marije

Dear Kit,

Thank you for your reaction. Congratulations to you and your family for the new pregnancy!

It was a very hard time for my family. My husband was working full-time and had the care for me and my son. At night he had to give my son the bottle. And in the morning help us in the shoure and help dressing. When is was wolking a little bit I broke my leg so I was on the bed again for 6 weeks. In the meen time I had to go to the hospital every month for a week of Infusions (witch didn't work). Because of all the medicine I got a kidney problem and wend back to the hospital. I had luckely grate help from both of our parents. But it's very hard for a mother to see how other people have to care for your child.

Now I am doing grate, I am walking again (with spalks on my legs) and enjoing my child every day. I can do everything again with him. My husband had a hard time when i was getting better because I could do everything on my one again. He feld in a black hole. We had some good help and now were are stronger than ever. We lived through it and are happier dan ever!

I hope that when I am fully recovered that we alsow can ejoy a new pregnany.

(sorry for by bad English)

Wish you well,

Kind regards,
Marije

Kit that is an amazing story!! I can totally relate to most of what you went though. I was diagnosed w/GBS 21 mths ago, exactly 1 wk after giving birth to my daughter. I didnt end up on a ventalator or feeding tub, but lost all musle control from head to toe, it was very hard eating and talking, especially to my son who was only 2 1/2 at the time. Within one week I was no longer able to hold my 7 lb daughter anymore. I spent only one month in the hospital and rehab center and celebrated my 31st birthday there, but it was heart renching to be away from my family and friends. Its amazing what strengh we find and determination when we want to get back to our children and family. When I went home I was using a walker and only had the left side of my face moving, but at least I was home and in time for my daughters baptism, which was my goal. I was able to attend that w/the help of a cane at that time. I still have residual weakness in my legs, can only sit on the floor for a few mins at a time w/the kids and still weakness on the right side of my face, but I give thanks for every day to be here w/my family. You are a true encouragement to all that are suffering or know someone who has suffered from GBS or CIDP. You are blessed to have such a wonderful family and congrats on the up coming birth of your third child. We are all blessed to have friends and family who stood beside us.

Congrats,
Amy :0)

Kit,
Thank you to you and your wife for showing us your journey. You made me cry for your pain and courage and I was so moved by your wifes sunny disposition despite her struggle to see you in such pain. You helped me to once again have gratitude for my mere struggle with CIDP. While I have had to change my life drastically and have a constant challenge with this disease, it is no where near the physical fight you endured. It is always somewhat of a satisfaction to know your pain in some way helps other people and you can be sure that yours does. It is very generous of you to share yourself with all of us and may the benefits of your compassion bless you manifold. Congratulations on your upcoming addition to your beautiful family.
In health,
Linda

What an amazing video kit, you had me crying. The video is so inspirational, what a great idea to put it on line like you have, it has touched so many people. I am so happy that you made such a quick recovry. It was a pleasure taking care of you and your family. Take care!
Melissa

KUDOS to the staff on Unit 24 (ICU) at the Grey Nuns Hospital. Please see my update above.

Thank you for sharing your journey. A week ago, I had never heard of Guillain Barré Syndrome. Then my youngest brother Clint called me with slurred speech as he was waiting on his wife to rush him to the ER. He has 3 young daughters, and like you went from healthy to medical crisis in a matter of hours. I am grateful to have found your story - for feeling alone and confused only intensifies the fears. Your strength and endurance are inspiration for us. Blessings to you and your family! Darla

Thank you so so much for posting this video journal. I am recovering from a very MILD case compared to this.
I am very happy to be alive all the same.
Thank you again! I needed to cry!

I wanted to send my well wishes to you. I don't know anyone who has or is suffering from this. I am in school and we have an assignment to write on GBS and I came across this website and your video while doing my research. I sat here and cried through the whole thing. You seem to have a wonderful wife and it was great how she involved the kids all the time. Thank you for sharing your journey with us...I wish you happiness and good health and congratulations on the upcoming baby!

Thank you Christine. Best of luck on your assignment!

All I can say is wow. This month will be the two year mark for me since my diagnosis so this is all very personal. I hope that you are doing well now. I can't seem to make it all the way through the video yet but at some point I will. Very touching!

Hey Kit Me and you almost have the same GBS experience. When you posted this video a year ago that was about the same time i was admitted. Its was May 15th on my 22nd birthday i was admitted. I was originally out in las vegas for my sisters wedding which was on my birthday instead of attenting the wedding my aunt drove me all the way back to Kiaser in fontana california because i lost all movement in Vegas. Fluid covered my whole lungs and my body was shutting down. they put me into indused coma and had me on a resperator. I woke up in ICU i was there for almost 4 weeks... OMG ICU was the hardest part... After ICU i was admitted to a rehab place that took people on the vent... There i worked my way off the trek and learned how to walk and eat again. I Ended up with 5 months of nausea though at the same time it was horrible, it has now almost been a year for me on the 15th of may and im already back to work part time i feel so blessed to be able to walk again so soon it took me a couple months to walk but i just knew i had to keep rahabilitating my self...

Yeah i can't believe im back to work already... im still not 100% yet though but my one year is coming up soon and i feel good about my recovery time... could have taken longer to get this far. Yeah crazy thing is i seen a doctor prior to vegas because i was feeling the symptoms of guillain barre.(but its so rare sure enough he didnt think it could be guillain barre, well enough didnt bring it up), so after this visit he said i can go to vegas surely enough it just kept getting worse. the reason why i didnt stay in Vegas is because i would have been stuck out there... I wasn't sure what was wrong with me i just couldnt move any more after it kept incresing... I had no idea my lungs were being filled with fluid! I was dragged out the car into a wheel chair... straight to er for x-rays. My aunt was waiting with me in the er and the er nurse was even being kinda rude, because when i couldnt hold the suction thing in my mouth to suck in the saliva my aunt was trying to help and the nurse told her not too but i was feeling like i couldnt breath... Then i remember waiting for the x_ray it was taking a while then IDK i dont remember much after that until i woke up from the induced coma. I guess i don't remember that because that was when my whole body was starting to shut down... scariest part of my entire life was that and waking up on a respirator. Im a complete independent women who went completely dependent. Your experience, my dad found on the internet he wanted to know exactly what it does and how it works and basically just researched it. i didnt get to watch this video until i got home... I just remember when i was sick my sister and dad would tell me about your video and how you came thru and that i can do this. It was so amazing to see the smile on my family and friends faces to see me move or even talk again... Im thankful for having my lil family i have and im thankful for my friends that were there for me and were there to care and nuture me as well. Family and friends are the best medicine i had! I sure your family was the best medicine for you especially having a new born baby that must of been so hard for you and your family to overcome. And i was reading what you were saying about lingering lingering as in cough or????? not sure on what you mean by that. I remember having a really bad cough baddest cough i ever had before iwent to vegas. I do time to time kinda limp like idk it just kinda feels like my nerves are still kinda twichin out sometime on my ride side hip and knee. IDK if thats from the Attack but i never had those lil feeling before, Im thinking over time it wont even do that at all. I would like to know as well how your recovery has come along?