Here a registration/impression of a meeting of people who have Pachyonychia Congenita, a rare gentetic skin desorder.
This meeting was set-up by the PC project UK for informational purposes and to meet other people who have the same.
Dermatologist, patients and some family from all over Europe, the USA and even Israel came to this meeting in Scotland.
If you have it or think you might have it. Your not alone, these people are there for you. They can help you with medication. Please sign in on the second website and do a test.
I happend to be here with my camera, have fun watching.
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