The music in Hugh: A look at Young Onset Alzheimer's on Vimeo

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14. The Dyer sisters

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4 months ago

13. Untitled

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5 months ago

12. COYOD encounter

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11. The Wedekings

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6 months ago

10. Bike in box.

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9. Bike box.

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8. Mile 300.

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7. Portland Teaser

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6. Mile 200.

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5. Mile 100

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4. Day one of tour

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3. The day before departure.

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2. Part 1: The Training

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1. The music in Hugh: A look at Young Onset Alzheimer's

by Spoke Your Mind

7 months ago

This is our personal story on our family's struggle with Young Onset of Alzheimer's, and how we continue to connect through music. This is the first of many videos to come.

Visit spokeyourmind.org

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Betty Perry 7 months ago

Emily,
I just found out about Hugh and saw your video. It breaks my heart. I am Matt Perry's Mom. Beth & Hugh are my friends and I want Beth to know I want to be there for her. Please pass this along to her.
Betty Perry
Spoke Your Mind 7 months ago

Hi Betty-

Glad you found us! Beth knows you're thinking of her- thank you for your comment. We will be posting more stories on the website: spokeyourmind.org if you are interested in following.

I hope you're family is well, I haven't seen Matt in years. Tell him hi for me.

Very best,
Emily
william fisher 7 months ago

Thanks for sharing your story. As a 60 yr-old music lover, it hit close to the bone. We need to raise public concern about this issue. Go to alz.org to sign up as a champion for the cause.
Spoke Your Mind 7 months ago

Hi William-

Thanks for your comment, glad you found us. Max and I are fortunately working with our local Alz Association chapter. You can see us here if you scroll down: alz.org/alzwa/

We will be posting more videos as we gather stories along our tour if you're interested in watching more!

-Emily
Chris Wynn 6 months ago

Hi
Your video and story sounds a lot like mine...

Last year I finished a film about my father with EOAD

please check out forgetfulnotforgotten.com

Thanks
Chris