Neurogenic orthostatic hypotension (also known as Neurogenic OH or NOH) occurs in people with an underlying neurologic disease and may cause them to experience symptoms of dizziness, lightheadedness and/or fainting when they sit or stand up. For many with NOH, these symptoms are persistent and often interfere with everyday activities. In NOH, the symptoms occur because the nervous system is not working properly due to an underlying neurologic disorder such as [Parkinson's Disease](socalmds.com/parkinsonsdisease.php).
### What’s so critical about having a new treatment for NOH?
More than 100,000 patients in the U.S. currently suffer from NOH, and treatment options are extremely limited. The only U.S. Food and Drug Administration (FDA) approved treatment at this time is midodrine; however, this agent is not yet proven to affect symptoms associated with the disorder and it causes a range of undesired side effects. Midodrine faces FDA withdrawal from the U.S. market if it does not demonstrate symptomatic benefit with its two ongoing studies by 2014. That’s why new treatment options need to be made available now.
### Treat NOH Now Advocacy Day
On October 3, 2012, Treat NOH Now took to Capitol Hill to meet with several Senate and House Congressional offices. Patients suffering from symptoms of NOH, caregivers, health care providers and NOH patient advocates met with members of Congress, to share their stories and request that they contact the FDA to urge accelerated review of new NOH treatments.
NOH's Awareness Day has passed, but it's a better time than ever to help find treatments. You can help finding new treatments for NOH by [writing a letter to your congressman](treatnohnow.com/act-now/) on the [Treat NOH Now](treatnohnow.com) website.
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