"We had one life that we had planned, and that got taken on a different trajectory after Bob got diagnosed with ALS…we try to stay one step ahead, only one step ahead. If you’re too far ahead, then you’re looking too far down the road."
- Gretchen Spreitzer, ALS caregiver, Bob Schoeni’s wife
Leading a successful life, revolving around family and academics, University of Michigan professor Bob Schoeni, unexpectedly has to adjust to an ALS diagnosis. Schoeni and his family quickly found support from friends and co-workers ready to defy the odds and to find a cure for ALS.
Ann Arbor Active Against ALS (A2A3.org), the grassroots movement inspired by Schoeni’s diagnosis, continually searches for fundraising ways to shore up cure-based funding for ALS. “One Step Ahead” explores how this positive approach guides the professor, his family, his medical team, and his supporters during a 7-month period. Fundraising efforts highlighted include six women who swim the English Channel, raising global awareness about ALS, as well as raising money for research; the joint effort of A2A3 and U of Michigan’s Phi Delta Theta and their annual Boxcar Derby; and A2A3’s Family Fun Day, where examples of an active lifestyle are demonstrated and encouraged.
"One reason that A2A3 is special is a group of people got some news that was a punch in the stomach…And often, a punch in the stomach, keeps you down. It didn’t keep us down."
- Kristin McGuire, A2A3 Board Member, neighbor & friend
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