The European Multiple Sclerosis Platform -EMSP- asked me to create and coordinate a group of photographers to achive a broad panorama of what is life like when you have MS in Europe. According to the Eurobarometer, there are substantial differences in terms of access to diagnosis, treatment, drugs, and general empowerment. Walter Astrada, Lurdes R. Basolí, Max Braun, Fernando Moleres and myself, treveled to 12 countries, and shot about 40 people in their context. We did dozens of interviews. Now we are about to edit the videos, and a dedicated site will host all of them in the coming months.
This is the story of Amadou and Bettina Touré, a couple of architects living in Freiburg, Germany. Amadou's father was from Mali, while his mother was from Lorraine, in Northern France. They moved to Freiburg, Germany about 15 years ago. Amadou was diagnosed MS, and has stopped working. He is a sophisticated person, a reader, someone who loves music and beauty in all forms. So is his wife. They are dealing with Amadou's disease with calm, courage and intelligence. I had the privilege to witness their life for a few days, learning how a disease like MS has other effects on people, other than those directly linked with the phisical aspect itself. Effects that are often ignored, but need to be explained to understand how deeply this desease can enter people's life and soul.
Loading more stuff…
Hmm…it looks like things are taking a while to load. Try again?