Event Date: May 29, 2013 | 12:00PM - 1:00PM EDT
Presented by: Dr. Susan Jaglal, Vice-Chair Research and Professor in the Department of Physical Therapy at the University of Toronto and Dr. Karen Tu, Scientist at the Institute for Clinical Evaluative Sciences (ICES), an Associate Professor at the University of Toronto and a practicing family physician in the Toronto Western Hospital Family Health Team.
Hosted by: CDRAKE

Dr. Jaglal, Vice-Chair Research and Professor in the Department of Physical Therapy at the University of Toronto describes the needs and gaps in health and community based services for neurological populations across Canada and the model that was developed based on the themes identified via these needs and gaps. The Chronic Care Model for Neurological Conditions (CCM-NC), builds on the Expanded Chronic Care Model and promotes intersectoral collaboration. The intent is that this model generates debate and discussion about the actions needed in each of the model components to enable persons to live better with a neurological condition.

As founder of the Electronic Medical Record Administrative data Linked Database (EMRALD), Dr. Karen Tu (Scientist at the Institute for Clinical Evaluative Sciences (ICES), Associate Professor at the University of Toronto and a practicing family physician) addressed the administrative data that we, as a publicly-funded healthcare system, have. Historically, this administrative data has been used to identify patients with other common chronic diseases; however use of this data to identify patients with neurological conditions across Canada has not yet occurred. Moreover, this data is not precise enough to be able to differentiate between Alzheimer’s disease and other dementias and Parkinson’s disease and secondary Parkinsonism. Dr. Tu addressed the EMRALD database and how it is being used to determine the validity of using administrative data to identify patients with epilepsy, multiple sclerosis, Parkinsonism or dementia and the subsequent effect.

The National Population Health Study of Neurological Conditions is a five-year study (2009-2014) that is expected to provide data on the scope, risk of onset and prognostic factors, health service utilization and the current and projected impact of neurological conditions over the next five, 10 and 20 years. In collaboration with Neurological Health Charities Canada (NHCC) and the Public Health Agency of Canada, this national Study is aimed at filling in gaps in knowledge about the state of neurological conditions in Canada. This multifaceted project consists of three national surveys, thirteen Pan Canadian peer-reviewed research studies and a micro-simulation project before concluding with a Synthesis Process.

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