CLAPA Conference 2013
SESSION 3 - OUTCOMES IN CLEFT CARE

CONDUCTING ‘GOOD’ RESEARCH: WHY IT’S IMPORTANT TO HAVE PATIENT AND PARENT INVOLVEMENT
Stephanie Tierney, Cleft Collective (Manchester), and Nicola Stock, Cleft Collective (Bristol)

Over recent years researchers have been encouraged to involve those receiving healthcare in decisions made about a study. So patients and parents are now asked to comment on how a project is developed and run, as well as being participants in a study. This is because they have a different but valid way of seeing things. It also means that those who are meant to benefit from the research have a say in what is looked at and how it is investigated.

In this presentation, Nicola and Stephanie will talk about the importance of patient and parent involvement in designing and conducting a project. They will provide examples of their work in this area and explain how you can get involved in cleft research.

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