On 16th March 2014 took place the V Race for Hope for Families with Rare Diseases, organized by the Spanish Federation for Rare Diseases (FEDER), sponsored by the biopharmaceutical company Shire, Group Día, KIA and ONCE Foundation. This race marked the finale of the Campaign of World Rare Disease Day.
The race has the theme "You run, our rights advance" and seeks to combine health, sport., fun and solidarity with the 3 million people with rare diseases in Spain.

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