Patient Testimonials

Joyce Scannell, a Narcolepsy patient, tells her story.

Narcolepsy is a chronic sleep disorder characterized by excessive daytime sleepiness (EDS) in which a person experiences extreme fatigue and often falls asleep at inappropriate times, such as at work or school.
Narcolepsy is often associated with cataplexy, a sudden loss of muscle tone triggered by intense emotions, sleep paralysis and hypnogogic hallucinations.

Caring Voice Coalition empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, our knowledgeable, caring staff maintains our solid reputation as a dependable, responsive organization with a unique, holistic approach to improving the lives of our patients.

To learn more, visit caringvoice.org/

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Patient Testimonials

Caring Voice Coalition Plus

Many of Caring Voice Coalition's patients have shared their stories with us.
This Channel contains a collection of testimonials from patients who have shared their experiences with orphan disease and CVC.

Caring Voice Coalition empowers patients who


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Many of Caring Voice Coalition's patients have shared their stories with us.
This Channel contains a collection of testimonials from patients who have shared their experiences with orphan disease and CVC.

Caring Voice Coalition empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, our knowledgeable, caring staff maintains our solid reputation as a dependable, responsive organization with a unique, holistic approach to improving the lives of our patients.

To learn more, visit caringvoice.org/

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