Patient Testimonials

Kindra Cansler, caretaker for her son Justin, an Infantile Spasms patient, tells her story.

Infantile spasms (also called “West syndrome”) are a special form of infant epilepsy. The spasms commonly begin between four and eight months of age and gradually disappear during the second to fourth year of life. Children with infantile spasms may have several hundred seizures per day.

Caring Voice Coalition empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, our knowledgeable, caring staff maintains our solid reputation as a dependable, responsive organization with a unique, holistic approach to improving the lives of our patients.

To learn more, visit caringvoice.org/

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Patient Testimonials

Caring Voice Coalition Plus

Many of Caring Voice Coalition's patients have shared their stories with us.
This Channel contains a collection of testimonials from patients who have shared their experiences with orphan disease and CVC.

Caring Voice Coalition empowers patients who


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Many of Caring Voice Coalition's patients have shared their stories with us.
This Channel contains a collection of testimonials from patients who have shared their experiences with orphan disease and CVC.

Caring Voice Coalition empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, our knowledgeable, caring staff maintains our solid reputation as a dependable, responsive organization with a unique, holistic approach to improving the lives of our patients.

To learn more, visit caringvoice.org/

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