We follow Noah Coughlan for a couple days of his 2,400 mile journey across the country, promoting awareness for a rare neurological disorder known as Batten disease.
Follow him at: http://battenjourney.com
Nicole chats briefly on the difficulties of researching a cure for a rare neurological brain disorder called Batten disease. [May 6, 2011 at the Batten Disease Support and Research Association headquarters, in Reynoldsburg, OH]
A brief introduction to Noah Coughlan, the man who will be running across the United States, to help raise awareness for a rare, fatal neurological disorder, Batten disease.
Read more at http://www.bdsra.org/noahrun.html
A series of short video clips that help educate the general public of the affects a rare neurological disorder, Batten disease, has on children and their family.
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