There is wide variation across the UK both in access to and quality of MS services. A government report in 2012 identified major problems, including differences in access to services, long wait for diagnosis, poor information and a lack of care coordination.
In the MS Barometer, the UK is ranked third-last out of 33 European states when it comes to countries providing disease-modifying treatment, with only 12% of people with MS on such medication.
A good fact is that the law protects people remaining in employment after diagnosis and requesting flexible working conditions. But discriminatory attitudes and poor awareness of MS unseen symptoms, such as fatigue, often threaten working relations.
Two main disability benefits exist for people with MS but significant cuts in funding are expected; and concerns have grown about how eligibility for those benefits will be determined. Also, care and support services are available across the UK but costs are variable.
EMSP’s MS Barometer offers additional country insights. It also shows that access to treatment, therapies and employment varies greatly across Europe.
For more information, visit underpressureproject.eu/web/
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