What About ME Film

  1. Barry Fotheringham commented on the forum thread The Future in the What About ME Film group
    Hi Susan, Many thanks for your reassurances. I just wanted to make sure this wasn't a very temporary resource before fully committing to it. I hope your project goes from strength to strength and I will assist you in any way I am able. Kind regards, Barry
  2. Double D Productions commented on the forum thread The Future in the What About ME Film group
    Hello Barry we appreciate your joining our community, and understand that when interacting in cyber space, that concerns may arise. We are pleased that we can host this site for you and all of the others on which to interact, and we know that it will be here for as long as the film is here, which we…
  3. another one i've got to get to watch (internet is going to die on me SO quickly this month)...was completely intrigued by this idea when it came up in the self-management course i'm doing this month.
  4. Kirsten commented on me...and M.E. in the What About ME Film group
    hi paul it helps so incredibly much to be able to talk about it with people who you don't even have to stop for a second and wonder if they'll understand. but also i want other people 'outside' this illness to get some idea of that grieving that goes on...i think it can be hard to understand (like…
  5. Kirsten commented on me...and M.E. in the What About ME Film group
    Great video, I think you have said what so many of us havent been able to. The grief is huge and unfortuntly I don't think it ever actually passes, it just changes form and then give you a kick when you are especially low. At least we have exceptance and understanding in here. :) xx
  6. Kirsten commented on me...and M.E. in the What About ME Film group
    Loss is such a big thing with this illness, so grief is a very natural reaction and something we have to work through all of the time. It helps to know others understand what it is like. That's where forums like this, especially was the videos help to put a face to this illness, are so helpful. Often…
  7. I have a positive Romberg, but they still ignore this!
  8. Neurologists don't seem to be interested if a) symptoms don't conform to what they know, and b) they can't find a space occupying lesion using a MRI or other type of scan. People with ME are not alone on this, I know numerous people online who have recognised neurological disorders that can only be…

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What About ME Film

Double D Productions Created by Double D Productions

This is a place for you to post your own videos and talk about your experiences of ME. We know how hard it is for people with ME to have the energy to get out and meet other sufferers, so we are hoping that this will be a great (and easy) platform to get to know each other!

Why not upload a 1-2 minute clip of you and your location? We want to see the real you: no glitz no glamour, just the truth.

Look forward to seeing you and hearing your stories! Don't forget to say who you are and your contact email.

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