What About ME Film

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  1. Partial Seizures?

    01:48

    from Paul Winter / Added

    200 Plays / / 2 Comments

    I have involuntary movements on a regular basis, but every so often I have an attack of them. These are usually much more violent and occur one after another, this can go on for hours. It feels as…

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    • Just when you think you have a window of sunshine!!!!CRASH!!

      06:18

      from Sharon Anne / Added

      77 Plays / / 0 Comments

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      • M.E. And Muscle Weakness

        07:04

        from Paul Winter / Added

        62 Plays / / 0 Comments

        This is my attempt at trying to demonstrate the problems with muscle weakness and fatigue I experience with M.E. I am not sure whether I have demonstrated it very clearly. You might need to watch…

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        • SLEEP...Precious Sleep!

          08:38

          from Alisa / Added

          38 Plays / / 0 Comments

          what works for me after nearly 2 decades of trial and error. i refer to a book in this video which is, 'Reviving the Broken Marionette' by Maija Haavisto. she covers nearly every drug...over…

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          • Just Another Night

            01:06

            from Carole Stevens / Added

            52 Plays / / 0 Comments

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            • The whole truth & nothing but the truth, so help ME!

              11:32

              from LASnow / Added

              291 Plays / / 0 Comments

              Living with Chronic Fatigue Syndrome (take two)

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              • Crap

                02:11

                from Lee Lee / Added

                87 Plays / / 0 Comments

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                • The Messiness of It...

                  05:21

                  from Alisa / Added

                  76 Plays / / 0 Comments

                  so much loss for us...too much time has gone by. rising up to let the world know we need help!

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                  • Crashing

                    01:26

                    from Amara / Added

                    69 Plays / / 2 Comments

                    This one may come up sideways not sure what happened and I don't have the brain to sort it out. Again not keen on sharing the not so pretty side of this, but at the same time want understanding…

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                    • A "Shot" In the Dark

                      07:35

                      from Alisa / Added

                      57 Plays / / 0 Comments

                      response to Maria giving herself injections. also about my experience with IVIG.

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                      • Faking It...

                        05:23

                        from Alisa / Added

                        53 Plays / / 0 Comments

                        Ever find your pride gets in the way of healing??? Ever find you want to meet up or just go out so you use caffiene, etc...to do it and then you pay the price???

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                        • XMRV testing in the uk (privately)..any help?????

                          02:43

                          from Sharon Anne / Added

                          69 Plays / / 0 Comments

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                          What About ME Film

                          Double D Productions Created by Double D Productions

                          This is a place for you to post your own videos and talk about your experiences of ME. We know how hard it is for people with ME to have the energy to get out and meet other sufferers, so we are hoping that this will be a great (and easy) platform to get to know each other!

                          Why not upload a 1-2 minute clip of you and your location? We want to see the real you: no glitz no glamour, just the truth.

                          Look forward to seeing you and hearing your stories! Don't forget to say who you are and your contact email.

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