We are the MDS UK Patient Support Group and our aims are:
To provide a networking service through which those newly diagnosed with MDS may share their experience with fellow sufferers.
To provide a contact help and advice telephone line 5 days/week
To organise several national patient information meetings with specialist speakers
To help patients create small regional support group meetings, to meet informally – or organise activities or small presentations.
To distribute information and raise awareness of MDS to patients, carers and health care professionals across the UK.
To provide access to a list of UK consultants, specialising in MDS.
To develop and maintain a website, providing information on MDS. Also direction to other relevant sites.