mds patient support


User Stats

Profile Images

User Bio

We are the MDS UK Patient Support Group and our aims are:

To provide a networking service through which those newly diagnosed with MDS may share their experience with fellow sufferers.

To provide a contact help and advice telephone line 5 days/week

To organise several national patient information meetings with specialist speakers

To help patients create small regional support group meetings, to meet informally – or organise activities or small presentations.

To distribute information and raise awareness of MDS to patients, carers and health care professionals across the UK.

To provide access to a list of UK consultants, specialising in MDS.

To develop and maintain a website, providing information on MDS. Also direction to other relevant sites.

External Links