1. CTTI Webinar Series: Patient Advocacy/Industry Partnerships to Accelerate Therapy Development

    59:54

    from CTTI / Added

    43 Plays / / 0 Comments

    Sharon Hesterlee and Holly Peay discuss the ways in which Parent Project Muscular Dystrophy has partnered with industry to accelerate therapy development for Duchenne Muscular Dystrophy.

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    • Doctors Council White Paper Video Presentation

      05:02

      from Doctors Council / Added

      7 Plays / / 0 Comments

      Doctors Council members in New York City's Health and Hospitals Corporation (HHC) recount our experience in writing and presenting a white paper to the deputy mayor Lilliam Barrios-Paoli, and HHC…

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      • Summary of CTTI's 2013 Annual Report

        02:59

        from CTTI / Added

        58 Plays / / 0 Comments

        The Clinical Trials Transformation Initiative (CTTI) was tremendously productive in 2013. Members worked on 15 projects that addressed a wide range of issues critical to conducting high-quality, efficient…

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        • RARE (2012) clip

          03:18

          from Icarus Films / Added

          A film by Dr. Maren Grainger Monsen and Nicole Newnham, Stanford University Center for Biomedical Ethics An Icarus Films Release RARE follows an extraordinary mother in a race against time to find…

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          • Angel Ambassador Suleika Jaouad

            00:52

            from Gabrielle's Angel Foundation / Added

            10 Plays / / 0 Comments

            In November 2013, Emmy Award-winning New York Times Well columnist and AML survivor Suleika Jaouad spoke about her experience as a cancer patient at our Fourth Annual Medical Symposium & Luncheon…

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            • Introduction to WASHAA | Robin Shapiro, WASHAA Chair

              18:01

              from WASHAA / Added

              5 Plays / / 0 Comments

              What is WASHAA all about? Listen to WASHAA Chair Robin Shapiro talk about the organization's mission, vision and exciting initiatives currently underway in patient advocacy in WA State.

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              • The Prescription For Kidney Disease Failure

                01:09

                from Risa Simon / Added

                13 Plays / / 0 Comments

                Encouraging a patient to "wait to get sicker" before advocating for their best life can be life threatening, particularly when it comes to Chronic Kidney Disease. If you're looking for the prescription…

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                • The Take Charge Patient

                  00:39

                  from Martine Ehrenclou / Added

                  6 Plays / / 0 Comments

                  http://www.thetakechargepatient.com/ -- Frustrated or confused about how to get good medical care? In her newest book, award-winning author Martine Ehrenclou, M.A., empowers patients to become proactive,…

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                  • How Patients and Advocacy Groups Are Shaping Research Today

                    03:21

                    from Patient Power / Added

                    93 Plays / / 0 Comments

                    Not long ago patients and patient advocacy groups were “downstream” of research and science for cancer. But not anymore. Leading patient advocate and executive of Myeloma UK, Eric Low, says it is…

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                    • Why Patients Should Become Research Advocates

                      05:12

                      from Patient Power / Added

                      323 Plays / / 0 Comments

                      The only way new treatments can be developed is if they are tested in clinical trials. In this video, CML patient and leading patient advocate Jan Geissler shares his views on why patients today should…

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