1. Rare disease sufferers 'join together for better care'

    03:16

    from Just Talking / Added

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    Around three million people in the UK suffering from one of more than five thousand rare and ultra-rare diseases are being urged to buddy up with others in similar situations as part of the ‘Join…

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    • Brent Street Support Rare Disease Day - Show Of Hands Ball

      02:02

      from Brent Street / Added

      Life At Brent Street. Students from Brent Street provided the entertainment at the Show Of Hands ball which raised money for Rare Diseases. Staff and students donated their time and parents supported…

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      • JCILlivefeb016

        58:46

        from mauri gandy / Added

        153 Plays / / 0 Comments

        JCI Live Austin February 27th, 2014 With Host J. Craig Gandy. Special Guest Adrian Lewis, Vanessa James sings "Through My Eyes". Rare disease day, Schenzephaly awareness with Terrie Randolph and 5-year…

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        • Rare Disease Day 2013 - Malaysia

          01:40

          from Videaux / Added

          1,228 Plays / / 0 Comments

          More information here : www.raregenomics.org

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          • Celebrating Rare Disease Day with the IFCR 2-2-13

            48:15

            from IFCR / Added

            What does it mean to be "Rare"? Join the IFCR on this webinar with special guest speakers Kelly Barnes and Ed Fennell as they discuss rare diseases and the global celebration of Rare Disease Day…

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            • Shake 'em On Down - Jonny Grave and the TombsTones

              04:23

              from MarbleRoad / Added

              159 Plays / / 0 Comments

              A special performance of "Shake 'em On Down" by Jonny Grave and the TombsTones at LEAP Sessions -- a Rare Disease Day event (2/29/12) to benefit the work of MarbleRoad [http://www.MarbleRoad.org].…

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              • The NJ Turnpike - Caged Animals

                02:29

                from MarbleRoad / Added

                23 Plays / / 0 Comments

                A special performance by Caged Animals at LEAP Sessions -- a Rare Disease Day event (2/29/12) to benefit the work of MarbleRoad [http://www.MarbleRoad.org]. This event was a program of IndieMatch…

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                • All The Beautiful Things In The World - Caged Animals

                  02:12

                  from MarbleRoad / Added

                  44 Plays / / 0 Comments

                  A special performance by Caged Animals at LEAP Sessions -- a Rare Disease Day event (2/29/12) to benefit the work of MarbleRoad [http://www.MarbleRoad.org]. This event was a program of IndieMatch…

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                  • Mastocytosis: Fabio's Story

                    07:25

                    from Ale Beggiato / Added

                    5,066 Plays / / 0 Comments

                    Thank you so much for watching this video!! I would really appreciate if you could share it with anyone you think would be interested; via facebook, email, twitter, or just do anything you can…

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                    • Rollercoaster by Benny

                      03:52

                      from MarbleRoad / Added

                      18 Plays / / 0 Comments

                      "Rollercoaster" by Benny performed by Pat Hawkins 2/18/2012 in Meridian Hill Park, Washington, DC Promo for LEAP Sessions / Take a LEAP for Complex Illness on Rare Disease Day 2012 {2/29/12} Come…

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