1. Fear of Cancer Recurrence: A Few Tips for the Big Day


    from Patient Power / Added

    19 Plays / / 0 Comments

    Beating cancer is a huge feat, but keeping the cancer from coming back is usually a concern for many survivors. Cancer survivor Randy Broad of Kirkland, Washington talks about how he coped with “scanxiety” and shares tips on how to prepare for check-ups. Randy shares how his attitude and living in the moment has played a huge role in extending his life.

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    • Phone Caregiver and Cancer Fighter Meet for the First Time - Charlotte Gorelick & Janice Duplessis


      from Just So You Know / Added

      After spending four years talking on the phone after being paired by CanCare, an organization that pairs survivor mentors with cancer patients, Charlotte and Janice meet for the first time at the Together in Hope Conference for Brain Tumor Patients at MD Anderson. Having had cancer four times (breast, lung and brain), Charlotte advised and supported Janice throughout her treatment for metastatic brain tumor, which she discovered in 2007 after having had breast cancer in the year 2000. Throughout this video, Charlotte and Janice conclude “we women are very strong.” Recalling their individual experiences they suggest to prospective patients not to “hide your cancer, but tell people about it” and address the importance of having a good caregiver (“it’s amazing what you learn when you’re sick – who’s there for you.”)

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      • "Scanxiety" and Patient Empowerment - Patient Discussion - Apr. 16, 2013


        from The Lung Cancer Living Room™ / Added

        18 Plays / / 0 Comments

        In this episode of The Lung Cancer Living Room™, the guests at the Living Room along with Bonnie and Danielle discuss topics related to each patient's own personal circumstances. First off is a look at "scanxiety", the anxiety that surrounds going in for your next PET or CT scan. The group gives lots of practical advice on how to alleviate this nervousness, such as by checking that you're being tested on the same machine as your previous test to avoid any false scares based on differing calibrations of the machines. Secondly, Nancy discusses how the T790 clinical trial being funded by the Lung Cancer Foundation and facilitated by ALCMI helped her catch her lung cancer long before she had any symptoms. Bonnie discusses the implications of this trial and how it could impact future pre-screening procedures for lung cancer, as well as the implications for the "inheritability" of lung cancer. Then Terry discusses developments in her daughter Natalie's case- her chemo break and what she's currently doing to boost her immune system which leads to a discussion about the new findings that the immune system can become re-sensitized to drugs that it had become resistant to after a break in usage. This leads to a look at new research by pharma in immunotherapies. Then a participant shares young survivor Emily Bennett's blog, embenkickscancer.wordpress.com, and how her story has inspired him in general. This is followed by a patient led discussion about "living with lung cancer" and being okay with "stable" as opposed to "cured". Finally, Bonnie and Danielle share the new Lung Cancer Patient Handbook and plenty of hope and encouragement to the group.

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        • "Scanxiety" and Patient Empowerment - Patient Discussion - 4/16/13


          from LungCancerFoundation.Org / Added

          94 Plays / / 1 Comment

          The group discusses topics related to each patient's own personal circumstances, such as "Scanxiety", the anxiety that surrounds going in for your next PET or CT scan, and what you can do to guarantee the most accurate results. Other topics include the T790 inherited lung cancer study, and immunotherapies.

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          • Coping with "Scanxiety"


            from THANC Foundation / Added

            147 Plays / / 0 Comments

            Survivors and caregivers describe the particular anxiety, called “scanxiety,” that comes with follow-up scans to screen for cancer recurrence after treatment and how they cope with it.

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