Stefanie Speed is a mother of 3 living in Yorba Linda, California. She was diagnosed with Susac's Syndrome, a rare auto-immune disorder, in 2005. She is one of the first 100 people in the world to be diagnosed.
This clip is a preview of an upcoming short documentary from filmmaker James Huffman, who teamed up with long time friend Nancy Goldhamer to help raise awareness about Susac's Syndrome and support Rare Disease Day 2016.
Rare Disease Day takes place on the last day of February each year. The objective is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.