Jun 3, 2011
There is a dire need for residential living options for the chronically disabled. When I was diagnosed with ALS in October 2006 at the age of 38, I was horrified to discover that my future would be living in a nursing home in a small room with a 90 year old roommate. Even then, I could only live there until I required a ventilator to breathe for me and then I would be forced to move to a hospital to live the rest of my life in a bed, never going outside or having a shower again. I knew that I had to find a better way.
The Steve Saling ALS Residence and Slifka MS Residence within the Leonard Florence Center for Living offer me and 19 others with ALS & MS real freedom and independence. The Residences are fully automated so that even the nearly locked-in can live a vital and productive life. The goal is now to build more residences so that my lifestyle can become the standard for the world. The ALS Residence will prove that ALS does not have to be fatal anymore. Until medicine proves otherwise, technology IS the cure.
YOU CAN HELP! If you are or know of a mission driven, non-profit nursing home in your community, we would love to help you explore the amazing rewards as well as the challenges of building a residence specializing in the care of people facing a life with severe motor disability like those with ALS, MS, and spinal cord injuries. Please write to ALSresidence@gmail.com to discuss and arrange a visit to see the first one in America just 5 minutes from the Boston airport.
Life is good :)