Moderator: Hudson Freeze, Ph.D., Director, Human Genetics Program, Sanford-Burnham-Prebys Medical Discovery Institute
Panelists: Bryce Olson, Global Marketing Director, Health and Life Sciences Group – Intel Corporation, Peter Kapitien – Inspire2Live, Amylynne Santiago Volker – Nicholas Volker – One in a Billion Foundation.
Research scientists are told “your best story beats your best data”. Without data, you’re not a scientist. Without a story, you have a tiny audience. Where does a scientist find the best stories? They come from people who used science, data and relentless determination to battle and overcome diseases, sometimes their own, sometimes in their family. Each story is deeply personal. Telling those stories enriches all the members of the personalized medicine ecosystem and expands its outreach.
How do we improve our storytelling as patient advocates?
How do relay these stories to a broader group beyond immediate stakeholders?
What is the role fundamental (undirected) scientific research in the stories?
How do we improve alliances between patients, clinicians and researchers?