New technological innovations are revolutionizing the type and amount of data that can be collected when studying a rare disease. This, in turn, strengthens understanding of the progression of a rare disease and/or the effectiveness of potential treatments. These innovations provide a way not just to collect better data, but also to collect data that is truly patient-centric. Hear from industry and patient advocacy leaders about the exciting applications of these new tools.
Speaker: Scott Schliebner, MPH, Senior Vice President of Center for Rare Diseases, PRA Health Sciences
Speaker: Allison Moore, Founder and Chief Executive Officer, Hereditary Neuropathy Foundation (HNF)