Unlike other stakeholders in the clinical research enterprise, patients and their families live and battle with disease on a daily basis. They have first-hand knowledge which can help to focus research on needed and valued questions and outcomes while strengthening participation in clinical research. Patients and families also share a sense of urgency, an understanding that a misstep or a delay in the research process can result in a heavy cost. Patients and researchers will share their stories on how patients can and should be powerful partners and drivers in research and therapy development.
Speaker: Luke Rosen, Founder, KIF1A.org, and Associate Director of Patient Engagement, Ovid Therapeutics
Speaker: Jeffrey Sherman, MD, FACP, Executive Vice President of Research and Development, and Chief Medical Officer, Horizon Pharmaceuticals
Speaker: Anthony Philippakis, PhD, MD, Chief Data Officer and Institute Scientist, Broad Institute of MIT and Harvard
Speaker: Daniel Fischer, Founder and Chief Executive Officer, Tevard Biosciences; and Program Director at the Massachusetts Institute of Technology (MIT); and Dravet Syndrome Parent Advocate