As members of the rare disease advocacy community, we understand that we are all an integral part of a much larger and growing ecosystem working to affect positive change in the rare disease space. Driving progress and development of treatments and therapies for rare disease is a team effort. Together we can do more than when we act alone. Several rare disease patient advocacy organizations have begun a movement to elevate collaborative values and commit to working together to improve the lives of so many. Join us as rare disease advocacy leaders launch the effort to THRIVE (Trust, Honest Communication, Respect, Intentional, Vulnerability, Engage and empower).
Speaker: Amy Miller, MA, MSN, PCNS-BC, Executive Director, Child Neurology Foundation