Rare disease patients may find themselves experiencing not just the physical challenges of the disease, but also grief for lost opportunities and expectations, anxiety over what is known and unknown about the rare disease, and depression. Join us for a discussion of these challenges shared throughout the rare disease patient community and what support resources and tools are available to help you thrive.
Speaker: Allison Fine, MSW, LICSW, Founder and Executive Director, Center for Chronic Illness
Speaker: Seth Rotberg, Board Member, Huntington’s Disease Youth Organization
Day 2, Track 1