Event Date: Jan 26, 2012 | 12:00PM - 1:00PM EST
Presented by: Bill Heibein, Alastair MacKay, Ernie & Joyce White, Jim Mann and Susan Bithrey
Facilitated by: Sarah Clark & Liz Lusk
Host: Canadian Dementia Resource and Knowledge Exchange (CDRAKE) and Alzheimer Knowledge Exchange (AKE)
Event Type: Healthy Living / Health Promotion, Lived Experience, Webinar
Please join us for event 3 of our 3-part Healthy Living and Dementia Online Event Series, hosted in partnership with the Alzheimer Knowledge Exchange (AKE). This 3-Part Series is designed for those interested in learning about healthy living and dementia. Each session offers a different, yet complimentary perspective on this topic including health promotion, self-management and how to live well with dementia. You may participate in 1 or all 3 sessions.
Event Description: Event 03: How I Live Well
Individuals living with dementia and their partners in care will present their stories of their dementia journeys. Strategies and approaches that each of them use to continue to live well will be profiled by each presenter, including strategies for memory limitations, enhancing well-being, keeping physically active, advocacy, and being socially engaged.
About Our Presenters
Bill Heibein was diagnosed in January 2000 at the age of fifty-nine, with early-onset Alzheimer's and, after a thirty-eight-year career in accounting, retired. However, he and his wife Heather continue to own and operate "Amethyst Farms", under which name they have bred, trained and shown registered Quarter Horses. As he has for the past thirty-seven years, Bill continues to play bass with the popular local swing and dixieland band the "Bottom of the Barrel." He is involved with both the Thunder Bay and Ontario Alzheimer Societies as a spokesperson and Champion for Dementia and was a member of the planning committee for the International A Changing Melody conference held in Toronto during March 2011. For the past five years, Bill has been Honorary Chairperson for the Thunder Bay Alzheimer Society "Walk For Memories". Bill is currently involved with a number of research programs being conducted by Dr. Elaine Wiersma at Lakehead University in Thunder Bay.
Alastair MacKay has a busy and enjoyable life since retiring as an accountant over 20 years ago. He continues to remain active in his accounting profession, his church, and other organizations, and was a Shriner clown for over 25 years. Alastair continues to remain active physically by working out 6 days a week and is actively involved in the Alzheimer Society of Thunder Bay.
My name is Ernie White and in 2004 I was diagnosed with Alzheimer's. I continue to remain active, working on my cars and driving. I live at home with my wife Joyce.
I am Joyce White and I asked almost 8 years ago for my husband to be tested for Alzheimer's. He is on Aracet and is continuing to live a pretty normal life with assistance as needed from me.
Jim Mann was diagnosed with Alzheimer's in February 2007 at the age of 58. He is now an advocate utilizing his experience and expertise in the business and volunteer sectors and as a Care Partner for his mother who also had the disease. He is an active volunteer with an emphasis on Alzheimer's and related dementias. Nationally, Jim is a board member of the Alzheimer Society of Canada where he is also co-chair of the public policy committee, and he is also a member of the Board of Directors of the Canadian Dementia Knowledge Translation Network. In his home province of BC, he is on the board of the provincial Alzheimer Society and a member of its advocacy committee, and is a community advisory committee member with the Centre for Research on Personhood in Dementia. Jim is proud to have written the Foreword for the book by Ruth Bartlett and Deborah O’Connor, Broadening the Dementia Debate: Towards Social Citizenship. In 2011 at the BC Society’s annual meeting Jim was awarded the Clyde and Lanny Slade Leadership Award for volunteer leadership and contributing to the Society’s mission especially through advocacy. Following a 25-year career with Canadian Airlines/CP Air in government affairs and various marketing management positions he established his advocacy and communications consultancy, Capital Business Strategies Ltd. On contract, Jim was the first full-time president & CEO of the Council of Tourism Associations of BC. His company was officially dissolved following his diagnosis. Born and raised in Vancouver, Jim has also been actively involved in Junior Achievement, the Vancouver and Surrey Boards of Trade, Jaycees, the National Youth Parliament (co-founder) and the BC Youth Parliament.
Susan Bithrey is a retired academic Library Technician. Her husband Reg, a former secondary school teacher, was diagnosed in 2007 with Early Onset Alzheimer’s Disease. Since then, Susan has assumed a full-time role as his care partner. Her goal is to keep Reg healthy, happy and involved in life, despite his declining cognitive abilities. The role of care partner is a challenging one, and Susan considers herself ‘a work in progress’.