2020-10-15: CPAG Webinar: Clinical Trials - Working with Your Patient Community. Focused on the use and value of patient data, this webinar explores the various ways patient data can be collected, ways to educate patients, and how a patient advocacy organization can help bring an engaged and knowledgeable patient cohort to a trial.
Presenters include Eileen C. King, PhD of Cincinnati Children's, Joshua M. Tarnoff of NephCure Kidney International, Tiina K. Urv, PhD, of NIH, and Kirsten Wheeden of the American Porphyria Foundation
