Presented by: Kimberley Widger RN PhD CHPCN(C), Assistant Professor, Lawrence S. Bloomberg Faculty of Nursing, University of Toronto and Nursing Research Associate, Pediatric Advance Care Team, The Hospital for Sick Children.
Families may experience immense suffering at the time of a child’s death. The care provided by health professionals prior to, at the time of, and following a child’s death has the potential to magnify and add to that suffering or to support families to cope with their suffering. High quality end-of-life care will ensure families are well supported in the midst of suffering. At the heart of high quality care are the connections between family members and health professionals. These connections enable health care professionals to tailor all aspects of care to meet families’ needs.
In this presentation, quotes from parents, the clinical experience of the presenter, and research findings will be shared to identify ways to connect with families and provide high quality end-of-life care. This presentation will also be applicable to health professionals who primarily care for adults as the underlying focus is provision of family-centered care. Examples from the pediatric setting, where family-centered care is the norm, may assist health professionals who work with adults to identify new ways of involving and including families in the care they provide.