Motive TV

‘No Time To Die’ reveals pediatric palliative care through the eyes of four families, offering a rare insight into the realities of life caring for a dying child. In this special one-off documentary we show the dignity and courage of families as they try to make the most of short and precious lives where milestones are measured in days rather than in years.

Over eight-months we get to know some of the families and staff of LauraLynn House, Ireland’s only pediatric palliative care hospice. We build powerful, intimate portrayals of families who have made LauraLynn a home away from home. Beyond LauraLynn, we meet other families who are trying to care for their child in a hospice at home setting, with the support of community nurses, and organisations like the Jack and Jill Foundation. We see the daily struggles as parents become round the clock caregivers administering medications and trying to keep their children comfortable.

Three of the stories in ‘No Time to Die’ are of families living in the moment: making the most of their time with their children. Two of the young children have inoperable cardiac conditions, while another has Lissencephaly, a condition that causes abnormal development in the brain. The fourth family featured are the Thompsons from Donegal. Brian and Sharon Thompson lost their little baby girl Victoria at nine months old.

The documentary offers a profound exploration of a very difficult and emotive subject area. Children are not supposed to die. That is not the natural order of things; parents and grandparents should not outlive their children or grandchildren. However, there are approximately 1,400 children living with a life limiting condition and in the region of 350 childhood deaths occur every year from these conditions.

Ultimately, the film is a moving and evocative portrait of lives lived out against the backdrop of palliative care home visits, of bustling hospital corridors and wards, of night shifts, of doctor consultations, of quiet family moments and the inexorable sound of the ticking clock. ‘No Time To Die’ is a reflection on life, love and loss within a unique and moving part of Irish life and a specialised area of the Irish healthcare system.

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