I was hired by the European Multiple Sclerosis Platform -EMSP- to coordinate a group of photographers to achieve a broad panorama of what is life like if you have MS in Europe. According to the Eurobarometer, there are substantial differences in terms of access to diagnosis, treatment, drugs, and general empowerment. Walter Astrada, Lurdes R. Basolí, Max Braun, Fernando Moleres and myself, treveled to 12 countries, and shot about 40 people in their context. We did dozens of interviews among people with MS and their relatives, friends, carers, and specialists. The UNDER PRESSURE project has its own dedicated site, where still photos, videos and a lot of useful information can be viewed, and more is about to be added in the coming months. These photos are part of my work in Poland, Germany and Italy.
This is the story of Amadou and Bettina Touré, a couple of architects living in Freiburg, Germany. Amadou's father was from Mali, while his mother was from Lorraine, in Northern France. They moved to Freiburg, Germany about 15 years ago. Amadou was diagnosed MS, and has stopped working. He is a sophisticated person, a reader, someone who loves music and beauty in all forms. So is his wife. They are dealing with Amadou's disease with calm, courage and intelligence. I had the privilege to witness their life for a few days, learning how a disease like MS has other effects on people, other than those directly linked with the phisical aspect itself. Effects that are often ignored, but need to be explained to understand how deeply this desease can enter people's life and soul.