Dr. Danny Chan is an interventional and vascular radiologist in private practice in the Dallas area. He addressed the June 2013 Dallas EDS support group, explaining his approach to the diagnosis, management, and treatment of pelvic congestion syndrome and varicose veins. He walked through the diagnostic tests for assessing the vein valves for reflux or varices and then walked through the process of cauterizing superficial veins, explaining how this is beneficial.
Although the disorders are seen independently in many people, Dr. Chan sees an overlap of patients with Pelvic Congestion Syndrome or Pelvic Insufficiency who also have Ehlers-Danlos Syndrome and Dysautonomia and/or Postural Orthostatic Tachycardia Syndrome (POTS). Dr. Chan explained what is known about this overlap and his theory for why the disorders seem to go together. He also addressed the effects and treatment of pelvic venous insufficiency in men, which can include impaired fertility and low sperm count that can be reversed with treatment.
According to the Pelvic Congestion Syndrome page at Wikipedia:
Women with this condition experience a constant pain that may be dull and aching, but is occasionally more acute. The pain is worse at the end of the day and after long periods of standing, and sufferers get relief when they lie down. The pain is worse during or after sexual intercourse, and can be worse just before the onset of the menstrual period.
Women with pelvic congestion syndrome have a larger uterus and a thicker endometrium. 56% of women manifest cystic changes to the ovaries, and many report other symptoms, such as dysmenorrhea, back pain, vaginal discharge, abdominal bloating, mood swings or depression, and fatigue.
According to Dr. Chan:
A vulva that is purple or blue from blood engorgement or that shows veins popping out of it is a sure sign that the woman has pelvic congestion syndrome. In those who are not symptomatic or having pain, he will take a wait and see approach, especially in younger patients (teens and 20s). In those who are symptomatic, he is able to provide significant relief. He cautions that with overlapping conditions, any pain an EDS/PCS/POTS patient has is potentially stemming from many causes, only one of which he is able to address. He wants to let the EDS community know about this option being available as one of the tools in the toolbox for managing chronic pain.
Find out more about Dr. Chan and his treatment of PCS:
Find out more about EDS:
Find out more about the Dallas EDS Support Group:
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