LOVE LOSS LIFE - The Beauty of a Slow Death
A documentary film by Joseph F. Nardelli
Inspired by Michele DeMeo
At 39 years of age Michele DeMeo was diagnosed with ALS, a terminal illness. Given only seven months to live in 2010, Michele is still with us. As she defies the inevitable she has become even more passionate and rigorous about living life to its fullest every day. This film celebrates her humble story.
Please feel free to visit lovelosslife.org to view or share the trailer and learn more about the film. Website is being updated for a launch in early August.
Director: Joseph F. Nardelli
JFN Motion Picture Productions, Ltd.
Length: 30 minutes
High Definition / Color
Cinematographer: Joseph F. Nardelli
Editor: Sophia Harvey
Theme Song (Written & Performed) by: Jackson Nardelli / Bad Man Yells
Audio Mixer: David Leaver
Website Facilitator: Elena Karpenko
LOVE LOSS LIFE: The Beauty of a Slow Death
A Documentary film directed by Joseph F. Nardelli
Inspired by Michele DeMeo
LOVE LOSS LIFE: The Beauty of a Slow Death is the first (short film) of a three-part trilogy. The trilogy will explore the subject of end-of-life through intimate portraits of individuals, family members and the medical community in America who face the experience and challenges that come with the end of life of an individual and all involved.
In the first of three personal films we meet Michele DeMeo, a woman who is not preoccupied with her terminal illness, or her autism, or her end-of-life circumstances. And while in respiratory failure and actively dying, Michele takes the approach that meeting her challenges head on and not allowing the inevitable to darken her day, is better for her and those around her.
Michele honors the gift of life that she is given every single day and finds unique ways to celebrate life for herself, with her wife, with friends and family, as well as with others who are important to her, but not without giving deep thought about her private life and raising some questions for all to ponder.
In this film we spend time with Michele learning about the challenges she faces through her wife, friends and medical professionals. Yet most of the time through self-reflection we are experiencing Michele and her enjoyment of life as she makes the very best of what little time she has been told she has. Her outlook seems to defy inevitability itself. Michele is still with us more than two-years after her terminal illness was diagnosed.
Michele confronts and acknowledges her Amyotrophic Lateral Sclerosis (ALS) in “The Beauty of a Slow Death”. A poignant memoire. One of three memoires she has published following her diagnosis. We witness her experience of the loss of her bungalow in York and her ability to function like the body builder she once was.
Chapter after chapter in her beautifully written memoir her position is clearly stated, “I realized at age 37, while lying in a hospital bed, that I had a choice. I could have been and become bitter in the unfairness of having ALS, or I could start to see that all the events that led up to my diagnosis had given me the tools to cope with what was to come.”
The film is philosophical and poetic more than it is medically descriptive. With voices from the medical community that represent opinions sometimes absent from our consciousness, the film becomes a framework for those voices, in celebration of Michele and offers hope and inspiration to all individuals who may be challenged in one way or another.
This website will become an extended presentation of all of the voices that contributed to the making of this film in support of the need for individuals, families and the medical profession to consider the importance of end of life care and how to celebrate the inevitability each one of us will one day uniquely face.
Joseph F. Nardelli