Roundtable: Becoming Your Own Best Advocate

The most compelling rare disease patient advocates are the people who have a rare disease and the people who live with someone who has that rare disease. No one will be more motivated to affect change than those who will most benefit from that positive change. We invite you to participate in our Friday Roundtable discussion with Christina Brundage.

Christina is a student at the University of South Carolina - Beaufort where she is majoring in public health. She was diagnosed with idiopathic hypersomnia at age 24 and is now passionate about helping other rare disease patients find their advocacy voice. Christina works as an environmental health and safety assistant and is the Coordinator for the Hypersomnia Foundation's Patient Advisory and Advocacy Council, a trained speaker for Project Sleep's Rising Voices of Narcolepsy, and a member of the Young Adult Representatives of the Rare Disease (YARR) Legislative Advocates.