1. ‘Jack and Jill & The Red Postbox’ encourages the audience to think about how they live and work alongside those in their communities who have a diagnosis of dementia.
    This was originally a fictionalised play, written, performed and produced by Skimstone Arts, Newcastle, and inspired by findings from a piece of research undertaken by Edinburgh and Northumbria Universities.
    The research was funded by the (then titled) NHS North of Tyne and was led by Professor Charlotte Clarke at the University of Edinburgh in collaboration with Dr Cathy Bailey, Senior Research Fellow and Dr Catherine Gibb, Senior Lecturer, both at Northumbria University.
    We subsequently secured funding from Edinburgh and Northumbria Universities and produced the film in this Vimeo. The filming was done in Felton Northumberland, and premiered in Gallery 45 in Felton on Sunday 13th December 2015.

    An interview about the background and making of the film is available at:
    vimeo.com/151024848
    We would very much appreciate feedback in the Comments below on how you have used the film and in what ways in contributes to your thinking about dementia. Thank you.
    A physical theatre performance has also been developed and tours with the support of an Arts Council for England award.

    We would very much like to know how you use this film and what difference it makes to you. Please do email charlotte.clarke@ed.ac.uk to let us know or if you have any questions.

    # vimeo.com/149265276 Uploaded 572 Plays 2 Comments
  2. Michael's Map has been produced in a partnership between the University of Edinburgh and Skimstone Arts. It is based in a research project funded by the Economic and Social Research Council held by Charlotte Clarke and Heather Wilkinson and in partnership with the Mental Health Foundation and Alzheimer Scotland (ES/L01470X/1 - Inciting dialogue and disruption - developing participatory analysis of the experience of living with dementia and dementia care). More information about the underpinning research is available at talkingdementia.org/

    You might watch Michael's Map on your own, with your family or with a group of colleagues or friends. Everyone will have their own experiences which shapes what you take away from watching the film. 'Michael' might be you, or someone you know.

    You might wish to have a discussion about things such as:
    - what seems to influence the different social connections that Michael has?
    - how do these changing social connections appear to influence Michael?
    - what influence does Michael seem to have on other people and how they respond to him?
    - in what ways can Michael and everyone else in Michael's life work together to make sure he stays connected and included?

    We would very much like to know how you use this film and what difference it makes to you. Please do email charlotte.clarke@ed.ac.uk to let us know or if you have any questions.

    If you would like further information about living with dementia, you should be able to get information that is relevant to where you are living from your local Alzheimer Scotland or Alzheimer’s Society branch or its equivalent.

    If you would like a transcript of this video please contact chris.sheridan@ed.ac.uk

    # vimeo.com/188113371 Uploaded 178 Plays 0 Comments
  3. If I Had a Memory is a poignant song about living with memory loss. It balances being light-hearted with some very important thoughts about the part that memory plays in our lives.

    Composed by Alison Rushby and performed by Chris Jones, the song explores the role of memory in knowing, being and doing. Echoing throughout the performance are humour and family history, giving a strong sense of the accomplishments and also sense of losses of a person living with memory loss. The song was originally written to be sung by a scarecrow who has forgotten his remembering head in a pantomime, and it draws on Alison’s reflections of a relative’s experiences of living with memory loss.

    You may like to view this song together with other family, children or work colleagues and have a discussion with them about living with memory loss. You may find some of the individual lines particularly helpful, such as:

    ‘Some say my head’s a turnip, but that’s an ugly rumour. It’s stuffed with good rye straw it is.’ – you could discuss what it actually feels like physically to have memory loss.

    ‘A keeper of family history’ – you could discuss who knows everything about your own family, who do you go to in your family to ask about the past, how important is it to have someone who is the keeper of your family history.

    ‘Most of all, I’d like to be a person who could remember me’ – you could discuss what it is like to be unsure about yourself and not always really remember who you are.

    ‘I can make up jokes you know, my one accomplishment’ – you could discuss how important it is to every person to feel accomplished, to be able to do something well (including people with memory loss!).

    ‘Most of all, I’d like to remember you’ – you could discuss what its like when someone does not remember who you are, and how much someone with memory loss wants to be able to remember you.

    We would very much like to know how you use this film and what difference it makes to you. Please do email charlotte.clarke@ed.ac.uk to let us know or if you have any questions.

    # vimeo.com/188115038 Uploaded 27 Plays 0 Comments
  4. # vimeo.com/188115915 Uploaded 6 Plays 0 Comments

Living with Dementia

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