IN MEMORY OF TREVOR LOUGHLIN TO SUPPORT THE TREVOR LOUGHLIN FOUNDATION DEDICATED TO FINDING A CURE FOR CATASTROPHIC BLOOD DISEASES. #TREVORLOUGHLIN #TREVORLOUGHLINFOUNDATION #RHULENROCKHILLRUNRAMBLE #ROCKHILL #SULLIVANCOUNTY #NEWYORK #LEUKEMIA #LYMPHOMA #LEUKEMIALYMPHOMASOCIETY #FINDTHECURE #GABRIELESPINOSAPHOTOGRAPHY
There is a little boy. His name is Andrew. He is 13 and he suffers from an aggressive sort of cancer called Aveolar rhabdomyosarcoma. For kids who get this BEFORE age 10 the prognosis is good.
Andrew was diagnosed at age 11.
He began treatment at Maria Fareri Children's Hospital in Westchester on July 3, 2015. The treatments included chemotherapy and even a stem cell transplant. The kid was a trooper - always smiling - never whining even if the chemo made him feel like crap. Even as his hair was falling out in his little hands, he had the stamina to joke about it. Treatment ended in 2016. Scans showed he was clean!! But Andrew didn’t forget the people who helped him. He’s done many fundraisers for Maria Fareri Children’s Hospital. I remember reading that while in the hospital as a sickly patient he would take time to visit other kids with cancer and cheer them up. What 11-year-old does these things today?
Unfortunately, the joy was very short lived as Andrew relapsed earlier this year with a vengeance. He was given the option to try a "trial" type of chemotherapy and he agreed. He wants to live I remember him saying.
What his mom Elizabeth told me:
“Yes he got it at 11 and he was already metastasizing before we found it he is stage 4 group 4 and with relapse its even less in our favor. But hoping this trial will give him a longer period of remission. I’m hoping for years but realistically no one knows. I used to follow a girl with same diagnosis almost to an exact diagnosis and she fought this cancer 8 times before she passed. There are 2 forms of rhabdomyosarcoma embryol which have the higher survival rate and then there’s Aveolar which Andrew has and that has the lower survival rate.”
The chemo has finally ended, but this cancer is SO aggressive that the doctors are now going to put him through grueling radiation treatments to try and kill every single possibly remaining and hiding cancer cell left for if even one Cell is left the cancer will start spreading again and immediately. You can imagine what this is going to do to him and how it's going to make him feel. As it is his immune
system is so depleted that he isn't allowed to be out and about where he might be exposed to germs.
Andrew has asked for the radiation to be postponed until after Christmas. He doesn’t want to feel “yucky” on what’s supposed to be a happy time. Unfortunately, the doctors said no, so he was to meet Santa while undergoing radiation treatments.
Andrew had sent his mom a Christmas Wish List and I got a hold of it. Paying It Forward Sullivan County took care of purchasing all Andrew's Wish List gifts for him and the Knights of Columbus Council 550 out of St. Peter's Church in Monticello took care of Santa and arranging the party. Taco Bell, which is Andrew's favorite eatery, was gracious in letting the event occur in their store in Monticello, and they even gave Andrew and Joshy, his little brother, free rein of the menu when it came to eating! Jackie the manager brought Andrew to the back and had him make his own Tacos!
It was a fun experience for Andrew and I cannot think of anyone who deserves it more. Andrew was scheduled to fly a plane, LITERALLY, that morning but the flight had to be rescheduled for New Years Eve Day due to ice on the runway. That flight is graciously being donated by Alex Cortez of Take Flight Aviation in Orange County, NY.
There may be some who don't know who Andrew is. His Facebook Page is called Team Andrew Strong and this is Andrew… vimeo.com/243488804
And this is Paying It Forward Sullivan County's Annual Christmas Good Deed for 2017!