1. A Waihonapedia is a new way for family and friend groups to organize their website. The software is free!
    It is focused on interactive discussions, sharing and questions/answers with experts, teachers and researchers.
    Key is that all data is owned by the family, so they have all the information at their fingertips

    # vimeo.com/146543339 Uploaded 245 Plays 0 Comments
  2. Elk jaar organiseren wij een dag waar mensen rond het Cornelia de Lange syndroom elkaar kunnen ontmoeten.
    Met deze film krijgt U een indruk hoe het is

    # vimeo.com/89340323 Uploaded 1,758 Plays 0 Comments
  3. Op kentalis was toevallig een video opname toen Rai gedrag toonde...
    Zou dit een Absence kunnen zijn?

    Uploaded 4 Plays 0 Comments
  4. Op vakantie in Canada...
    In seaword, Niagara was Rai erg gefascineerd door de Orca's

    Uploaded 3 Plays 0 Comments
  5. After 12,5 years going very slowly, the first setps Alone,
    Just concentrate…. (and nice candy's help)

    # vimeo.com/43476109 Uploaded 246 Plays 0 Comments

CdLS World federation

Gerritjan Koekkoek Plus

Video's about Cornelia de Lange syndrome

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