Nacho, two years old, is affected by Dent syndrome, a minority disease. There are only fourteen cases in Spain and 250 in the world since it was first diagnosed in the 70s. His is the youngest and most aggressive case ever known. It consists on massive loss of substances such as proteins, calcium or potassium through the urine. His mother Eva, who suffers from another disease, has focused her entire life to save her son. Six months ago she created an association and has become a leader in the media. She is constantly involved in a campaign to raise money for research to find a cure.
The 2nd film for 12 Films in 12 Months for 2013 cover's a little piece of Patricia Ortiz's story about her fight against the rare disease LAM.
Starring: Patricia Ortiz & Roger Ortiz
Filmed & Directed by: Dan Coronado
Edited by: Dan Coronado & Ian Robertson
Drivers: Bernadette Coronado
Intern: Ellie Coronado
Music: "Spring" by The New Solstice
Special thanks to: The LAM Foundation & Skyflash/Revolution/Zoca
Brentwood photo courtesy of Robert Fagnant
For the 2013 festival, ffresh teamed up with The Co-operative Cymru/Wales to produce a short film competition to find young filmmakers to create 2 factual short films that reflect the people, communities, and culture of Wrexham (the host city of ffresh 2013).
Charlie Bear by Glyndŵr University student Hayley Wiliams documents the story of Charlie Lewis, a young boy with Smith-Magenis Syndrome – a very rare developmental disorder that affects approximately one in 25,000 – and his parents Kim and Dave Lewis.