1. Nacho, two years old, is affected by Dent syndrome, a minority disease. There are only fourteen cases in Spain and 250 in the world since it was first diagnosed in the 70s. His is the youngest and most aggressive case ever known. It consists on massive loss of substances such as proteins, calcium or potassium through the urine. His mother Eva, who suffers from another disease, has focused her entire life to save her son. Six months ago she created an association and has become a leader in the media. She is constantly involved in a campaign to raise money for research to find a cure.

    # vimeo.com/51747044 Uploaded 1,837 Plays 0 Comments
  2. The 2nd film for 12 Films in 12 Months for 2013 cover's a little piece of Patricia Ortiz's story about her fight against the rare disease LAM.

    Starring: Patricia Ortiz & Roger Ortiz
    Filmed & Directed by: Dan Coronado
    Edited by: Dan Coronado & Ian Robertson
    Drivers: Bernadette Coronado
    Intern: Ellie Coronado
    Music: "Spring" by The New Solstice

    Special thanks to: The LAM Foundation & Skyflash/Revolution/Zoca
    Brentwood photo courtesy of Robert Fagnant

    HD Version coming soon...

    # vimeo.com/63304554 Uploaded 181 Plays 0 Comments
  3. Blair Dean tells us the story of her youngest child, Hazel, and her battle with a rare skeletal disorder, Klippel–Feil Syndrome.

    Music licensed through Songfreedom. "Missing" by Kerry Muzzey
    Additional music by Tyler Banks.

    # vimeo.com/65526684 Uploaded 1,375 Plays 0 Comments
  4. For the 2013 festival, ffresh teamed up with The Co-operative Cymru/Wales to produce a short film competition to find young filmmakers to create 2 factual short films that reflect the people, communities, and culture of Wrexham (the host city of ffresh 2013).

    Charlie Bear by Glyndŵr University student Hayley Wiliams documents the story of Charlie Lewis, a young boy with Smith-Magenis Syndrome – a very rare developmental disorder that affects approximately one in 25,000 – and his parents Kim and Dave Lewis.

    # vimeo.com/64223131 Uploaded 281 Plays 0 Comments
  5. # vimeo.com/65684284 Uploaded 167 Plays 0 Comments

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