2012 RARE Patient Advocacy Summit

Global Genes PRO

In conjunction with the first annual RARE Tribute to Champions of Hope Gala, Global Genes | R.A.R.E held a Patient Advocacy Summit on September 28, 2012, from 9 a.m. to 3 p.m. at the Balboa Bay Club & Resort. Patient advocates engaged, learned, and discussed…


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In conjunction with the first annual RARE Tribute to Champions of Hope Gala, Global Genes | R.A.R.E held a Patient Advocacy Summit on September 28, 2012, from 9 a.m. to 3 p.m. at the Balboa Bay Club & Resort. Patient advocates engaged, learned, and discussed a variety of topics that directly affect them leading to collaborations that will benefit the entire rare community. This hugely popular event was sold out weeks before the event took place with 140 participants representing a variety of diseases, patient foundations, pharmaceutical companies, and companies supporting the rare community with over 200 participating via webcast.

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