1. 24 Year old Christina Logan was diagnosed with FA when she was just 21 years old. Still in college at the time, Logan says she didn’t know what to do.

    “It was a lot to take in. I was still in college and I didn’t know how to react.”

    But Logan did react, and in a big way. The now FARA Ambassador for the Friedrich’s Ataxia Research Alliance helps manage the FARA Twitter Account and writes for the FARA Ambassador Blog, with the goal of using Social Media to raise money and to reach people, many of them diagnosed with the disease in their youth.

    “I just love spreading the word and raising awareness. Raising awareness is key in getting the word out for a cure,” she says.

    And, with the annual Ride Ataxia event peddling off in Blue Bell, Pennsylvania, Logan hopes to help the ride raise an unprecedented $250,000 to support FA research and patient care.

    If you’d like to join Christina in her fight to find a cure for Friedreich’s Ataxia, check out this video and follow her on Twitter at @ChristinaRoseL.

    # vimeo.com/116510887 Uploaded 110 Plays 0 Comments
  2. Liam Dougherty is gearing up for the 2013 Ride Ataxia biking event in Blue Bell, Pennsylvania. Liam, a graduate student at the University of Pennsylvania, has a lot of accomplishments from his lifetime to be proud of. Raising money towards finding a cause for Friedich’s Ataxia certainly makes the list.

    Growing up with scoliosis as a child, Liam was diagnosed with Friedrich’s Ataxia when he was just a sophomore in high school. This rare neurological disease impacts coordination, balance and speech for those impacted but it hasn’t stopped Liam from living life to the fullest.

    Now 24, he plans on participating in this weekend’s biking event not only to raise funds towards FA research, but to raise awareness about the disease overall.

    Aside from the daily support of his four-legged companion Virgil, Liam will also be joined by his family as they ride along with him in the race this weekend.

    # vimeo.com/116509239 Uploaded 25 Plays 0 Comments
  3. eet Grace Haupt. She’s a 6th grader at Episcopal Academy. She’s a young student who truly loves learning and school. In fact, she says that she hopes to ultimately have a career in some field of science. Her other passions include reading, the Phillies, and her friends, with whom she shares a mutual admiration. Grace has Friedreich’s Ataxia, a rare neurological disorder that affects her muscular coordination and balance. But to her friends, she’s no different than anyone else. Grace’s nonchalant attitude towards her condition has empowered those around her, leading her buddies to raise around $1,000 for the Friedreich’s Ataxia Research Alliance. But her resolve has touched them in other ways, too – they see her strength as a lesson in perseverance through hardship.

    # vimeo.com/79104746 Uploaded 20 Plays 0 Comments
  4. 45-year-old Dan Webb, of Warminster, plans to ride in Sunday’s Ride Ataxia Event and is warming up along the Schuylkill River with Ride Ataxia Founder Kyle Bryant. Webb keeps in shape by riding his hand cycle three times a week using equipment specifically designed to accommodate an injury he sustained 4 years ago.

    Hundreds of people will be gathering this Sunday, October 12th in Blue Bell Pennsylvania for the 6th annual Ride Ataxia event that helps in the fight to find a cure for the rare disease called Friedreich’s Ataxia. Two area non-profits are putting their muscle to good use by helping people who need adaptive equipment. Both the IM ABLE Foundation and The Pennsylvania Center for Adaptive Sports plan to provide some hand cycles for Sunday’s event to support Kyle Bryant and others in the FA Community.

    If you’re interested in riding or help by donating- Go to rideataxia.org

    # vimeo.com/114021387 Uploaded 29 Plays 0 Comments

Ride Ataxia

Philly Philms Plus

PHL17, a Tribune Media owned TV station in Philadelphia, is a longtime sponsor of the yearly cycling event known as "Ride Ataxia" held to promote research to treat and cure Friedrich's Ataxia, a rare neurological disease affecting muscular movement. …


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PHL17, a Tribune Media owned TV station in Philadelphia, is a longtime sponsor of the yearly cycling event known as "Ride Ataxia" held to promote research to treat and cure Friedrich's Ataxia, a rare neurological disease affecting muscular movement. In 2013 and 2014, Philly Philms researched, co-wrote, shot and edited five feature stories to air on PHL17's morning news show "Eye Opener" as a way to creatively promote the Ride Ataxia events.

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