1. Lumos Pharma is honored to support the global awareness campaign of Rare Disease Day 2017.
    We are launching the below video "ScreenCreatine NOW!" in 6 languages for Rare Disease Day.
    French, Dutch, Italian, Spanish, Portuguese, Japanese)#rarediseaseday #CareforRare #CCDSawareness #ScreenCreatine
    CCDS are 3 genetic diseases that have problems with making or transporting creatine into the brain. All are under diagnosed and 2 of the 3 CCDSs are treatable.
    Learn about the signs and symptoms and how specific urine and plasma tests can help detect these rare pediatric neurodevelopmental disorders.
    Watch the video and spread the word about
    Cerebral Creatine Deficiencies Syndromes (CCDS)!
    We would be delighted to make more language versions so that more people around the globe can be aware of CCDS. Get in touch with us if you would like to help!

    # vimeo.com/205968523 Uploaded 39 Plays 0 Comments
  2. # vimeo.com/206003293 Uploaded 15 Plays 0 Comments
  3. It's Worldwide Rare Disease Day- Feb 28th, 2017!
    Steun Lumos Pharma in het verhogen van het bewustzijn over Cerebrale Creatine Deficientie Syndromen -CCDS.
    Denk na over een probleem met creatine wanneer u deze symptomen zien:
    Ernstige spraakproblemen..Epileptische aanvallen..Gedragsstoornissen..Problemen met de spijsvertering
    #rarediseaseday #CareforRare #CCDSawareness #ScreenCreatine

    # vimeo.com/205953841 Uploaded 3 Plays 0 Comments
  4. It's Worldwide Rare Disease Day- Feb 28th, 2017!
    Rejoignez Lumos Pharma pour sensibiliser le public aux syndromes de déficience en créatine dans le cerveau –« CCDS »-
    Pensez à un problème de créatine lorsque vous constatez ces symptômes:
    Troubles sévères du langage...Crises...Troubles du Comportement...Problèmes Digestifs
    #rarediseaseday #CareforRare #CCDSawareness #ScreenCreatine

    # vimeo.com/205953853 Uploaded 45 Plays 0 Comments
  5. It's Worldwide Rare Disease Day- Feb 28th, 2017!
    Partecipate con Lumos Pharma ad aumentare la sensibilizzazione sulla Sindrome del Deficit della Creatina Celebrale – CCDS.
    Quando vedete questi sintomi pensate a un problema della creatina:
    Gravi problemi di linguaggio..Convulsioni..Disturbi del comportamento..Problemi digestivi
    #rarediseaseday #CareforRare #CCDSawareness #ScreenCreatine

    # vimeo.com/205953869 Uploaded 21 Plays 0 Comments

Screen Creatine NOW!

Lumos Pharma Plus

CCDS (Cerebral Creatine Deficiency Syndromes) are 3 genetic diseases that have problems with making or transporting creatine into the brain. All are under diagnosed and 2 of the 3 CCDSs are treatable.
Learn about the signs and symptoms and how specific…


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CCDS (Cerebral Creatine Deficiency Syndromes) are 3 genetic diseases that have problems with making or transporting creatine into the brain. All are under diagnosed and 2 of the 3 CCDSs are treatable.
Learn about the signs and symptoms and how specific urine and plasma tests can help detect these rare pediatric neurodevelopmental disorders.
Lumos Pharma is launching the below video "ScreenCreatine NOW!" in 6 languages for Rare Disease Day.
#rarediseaseday #CareforRare #ScreenCreatine

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