Brian Johnson

Brian Johnson

Curious if there are others who might have taken the time to document their sick child's life? Worried that doing so might make me look selfish and disconnected from my son but dealing with a rare condition that my son has is difficult when there is such little information of others in the same situation. I would be so happy to have found another who had something to share when I first received my sons diagnoses.

Link: vimeo.com/49978148

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