What About ME Film

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  1. Partial Seizures?


    from Paul Winter Added 225 0 2

    I have involuntary movements on a regular basis, but every so often I have an attack of them. These are usually much more violent and occur one after another, this can go on for hours. It feels as…

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    • M.E. And Muscle Weakness


      from Paul Winter Added 65 1 0

      This is my attempt at trying to demonstrate the problems with muscle weakness and fatigue I experience with M.E. I am not sure whether I have demonstrated it very clearly. You might need to watch…

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      • SLEEP...Precious Sleep!


        from Alisa Added 38 0 0

        what works for me after nearly 2 decades of trial and error. i refer to a book in this video which is, 'Reviving the Broken Marionette' by Maija Haavisto. she covers nearly every drug...over…

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        • Just Another Night


          from Carole Stevens Added 52 0 0

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          • The whole truth & nothing but the truth, so help ME!


            from LASnow Added 323 3 0

            Living with Chronic Fatigue Syndrome (take two)

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            • Crap


              from Lee Lee Added 87 0 0

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              • The Messiness of It...


                from Alisa Added 76 1 0

                so much loss for us...too much time has gone by. rising up to let the world know we need help!

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                • Crashing


                  from Amara Added 69 1 2

                  This one may come up sideways not sure what happened and I don't have the brain to sort it out. Again not keen on sharing the not so pretty side of this, but at the same time want understanding…

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                  • A "Shot" In the Dark


                    from Alisa Added 57 2 0

                    response to Maria giving herself injections. also about my experience with IVIG.

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                    • Faking It...


                      from Alisa Added 55 1 0

                      Ever find your pride gets in the way of healing??? Ever find you want to meet up or just go out so you use caffiene, etc...to do it and then you pay the price???

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                      What About ME Film

                      Double D Productions Created by Double D Productions

                      This is a place for you to post your own videos and talk about your experiences of ME. We know how hard it is for people with ME to have the energy to get out and meet other sufferers, so we are hoping that this will be a great (and easy) platform to get to know each other!

                      Why not upload a 1-2 minute clip of you and your location? We want to see the real you: no glitz no glamour, just the truth.

                      Look forward to seeing you and hearing your stories! Don't forget to say who you are and your contact email.

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