1. A Primer in Inherited Metabolic Disorders


    from Dimitri Agamanolis Added 2,142 1 0

    An introduction into inherited metabolic disorders focusing on clinical aspects and principles of pathology of lysosomal, peroxisomal, mitochondrial, and amino acid disorders.

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    • Expedition Awareness Teaser - Equipment Testing.


      from Phil Added 498 0 0

      Teaser shot while cold weather testing our gear and equipment at Little Sahara S.P. This is in preparation for a 5000+ mile expedition to raise awareness for Adrenoleukodystrophy - a life threatening…

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      • Emergency Lighting Install


        from Phil Added 190 0 0

        We decided to add emergency lighting to both our expedition rigs in the event we encounter severe weather and must pull over, one of the vehicles must be located by air, or we have to conduct road…

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        • CheckOrphan NewsFlash November 6, 2009


          from Rare Diseases Added 60 0 0

          CheckOrphan NewsFlash for Friday, November 6, 2009 - breaking news about rare diseases, orphan diseases, orphan drugs, and neglected diseases. Today's broadcast highlights topics about: adrenoleukodystrophy,…

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