1. A Primer in Inherited Metabolic Disorders


    from Dimitri Agamanolis / Added

    1,105 Plays / / 0 Comments

    An introduction into inherited metabolic disorders focusing on clinical aspects and principles of pathology of lysosomal, peroxisomal, mitochondrial, and amino acid disorders.

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    • Expedition Awareness Teaser - Equipment Testing.


      from Phil / Added

      489 Plays / / 0 Comments

      Teaser shot while cold weather testing our gear and equipment at Little Sahara S.P. This is in preparation for a 5000+ mile expedition to raise awareness for Adrenoleukodystrophy - a life threatening disease my one year old son has. We are filming a documentary of the expedition and my story. For more info visit: expedition-awareness.org or facebook.com/expedition.awareness. Shot with an HC9 (fuel up) and V1U (at Little Sahara).

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      • Emergency Lighting Install


        from Phil / Added

        186 Plays / / 0 Comments

        We decided to add emergency lighting to both our expedition rigs in the event we encounter severe weather and must pull over, one of the vehicles must be located by air, or we have to conduct road side repairs. As noted in the video, AMBER/CLEAR (white) lights were used in accordance to our local DMV regulations. If you choose to add additional strobing lights, check with your local laws. ::::NOTE: the Nikon D3100 nighttime video makes the white lights appear rather blueish but they are indeed white. These are inexpensive eBay lights. $23 (Jeep) and $37 (Rover) shipped

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        • CheckOrphan NewsFlash November 6, 2009


          from Rare Diseases / Added

          60 Plays / / 0 Comments

          CheckOrphan NewsFlash for Friday, November 6, 2009 - breaking news about rare diseases, orphan diseases, orphan drugs, and neglected diseases. Today's broadcast highlights topics about: adrenoleukodystrophy, ALD, lentiviral vectors, HIV, molybdenum cofactor deficiency type A, neurodegenerative disorder, to-BBB, Genzyme, neurodegenerative disease, GenVec, FDA, orphan drug, TNFerade, pancreatic cancer, Green tea, cancer prevention, oral cancer, oral leukoplakia, diffuse pontine glioma, Katie McKerracher Trust, brain cancer http://www.checkorphan.org/ http://www.checkorphan.org/content/newsflash/ http://www.katiemckerrachertrust.co.uk/

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