1. The Top Ten Things Every ACHD Patient Should Know


    from ACHA Added 587 2 0

    ACHA President/CEO Amy Verstappen presents the top ten tips she sees as essential for every Congenital Heart Defect (CHD) survivor. Based both on her ACHA leadership experience and her own personal…

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    • Exercise and Congenital Heart Disease


      from Jodi Lemacks Added 153 0 0

      Dr. Nicolas Madsen talks to CHD parents, patients and families about exercise for the CHD patient.

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      • Cardiac Catheterization Opening the Black Box


        from Jodi Lemacks Added 147 1 0

        In this webinar, Dr. James Kuo of Cook Children's will talk about cardiac catheterization. Many children with congenital heart disease will need a cardiac catheterization at some point in their…

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        • Paul Cardall Lecture: Before My Heart Stops


          from Paul Cardall Added 356 0 0

          Paul Cardall shares his story at the 2010 Primary Children Medical Center's annual Festival of Trees kick off. The Festival is organized by a volunteer board of 85 women who enlist time and talents…

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          • CHD 101 A Congenital Heart Defect Primer


            from Jodi Lemacks Added 1,555 4 0

            Learn about some of the major structural heart defects and how they occur. This is an overview and can help you understand these defects so you can give support to others and have a better understanding…

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            • evan 1st birthday video 1


              from Czarina Hounsel Added 363 0 0

              Evan's first year - a boy born with one of the rarest syndromes out there - my 1 in a Million son's brave year battling through 2 heart surgeries (one open heart surgery) and cleft lip and…

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              • TGA- Peytons Story


                from Amanda Eyler Added 399 0 0

                The video I made about my son Peytons story with TGA.

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                • Caden's Story


                  from Dawn Silverman Added 182 1 0

                  5 years ago today, Evan and I anxiously sat in the Miami Children’s Hospital CICU waiting room as we trusted Caden’s heart in the miraculous hands of Dr. Redmond Burke. We are still so…

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                  • Mikaal Yousaf


                    from Every Life Has A Story Added 104 0 0

                    Marta & Khurram lost their 4 1/2 month old son, Mikaal to a congenital heart defect on 2/12/10. This video was made @ everylifehasastory-home.blogspot.com

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