1. Friendship Equals Happiness

    22:35

    from Just So You Know / Added

    Throughout this video, the extremely optimistic and happy husband and wife give a shout out to the people who have helped them along their journey and recall their experience conquering his brain tumor. From her first time at a support group to his Chick-Fil-A cravings (“he was like a pregnant woman!”), the couple concludes that it is important to be flexible, know your limits, live life like there IS a tomorrow and most importantly, to marry a wonderful person while venturing into the cancer battle. To hear more tips and tricks, as well as some humorous stories, tune in to this uplifting conversation.

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    • Learning to Swim - William Lewis

      30:47

      from Just So You Know / Added

      “Our time together is more important than Doc McStuffins.” Thirty-three year old William is a father of two daughters – four year old Abigail and baby Audrey (whom he hopes will learn to speak soon and that her first word will be ‘daddy’). Throughout this video, he addresses his daughters and his wife, recalling memories and giving his daughters advice. Concluding that one of the most important things in life is to treat people the way you would want to be treated, William highlights his daughters’ quirky habits and wants them to “remember being silly and being tickled and laughing and making jokes." Having discovered his tumor two weeks ago, William is still on his journey to healing. Despite being uncertain what the future holds, he hopes for the best.

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      • Is Refractory Myeloma a Life Sentence?

        01:59

        from Patient Power / Added

        226 Plays / / 0 Comments

        Will refractory myeloma still respond to various drugs once they’ve been used earlier in treatment? Many patients worry once the cancer progresses, whether it’s possible to revisit some of the same drugs used in the initial treatment or will they be refractive to those agents forever. Dr. Robert Orlowski explains how some drugs can indeed show response if used in a different combinations rather than drugs used as a single agent.

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        • How to Be an Active Member of Your Healthcare Team

          06:24

          from Patient Power / Added

          161 Plays / / 0 Comments

          Dr. Thomas Martin, a myeloma expert from UCSF, discusses the importance of being proactive in your own care, including voicing concerns about side effects and complying with treatment. Dr. Martin also explores the role of complementary medicines in myeloma and why it is important for patients not to hesitate when inquiring about complementary options. Dr. Robert Orlowski joins the discussion to emphasize the importance of doctor-patient communication before adding therapies that could potentially interfere with a patient's standard treatment regimen.

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          • Living With Twins, or My Life with Two Brain Tumors - Valerie Steele

            21:37

            from Just So You Know / Added

            “If I can’t change it, don’t worry about it” Throughout this video, Valerie Steele recalls and highlights all the people who have made an impact in her life. From her mother, who “taught me how to cook, clean and take care of myself” to Mrs. Owens, who inspired her to be a teacher and Lindsay Buff, who “makes me laugh uncontrollably with her loud, exuberant laugh”, Valerie is an individual who carries herself with grace, yet loves to have fun. Being apt to help others, during her battle with twin brain tumors on either side of her head (“people have always told me I’m special and I guess that just makes me extra special”), Valerie mustered up the courage to be the one to ask for help. Therein she learned not only that “a friend doesn’t have to be someone you talk to every day, but you should know that you can call them anytime,” but also had to confront her fears and discover the inner strength that she never thought she had. Therefore, for Valerie, living with cancer was a learning experience – one she would never trade if she could.

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            • Participating in a Clinical Trial: Common Questions and Concerns

              02:00

              from Patient Power / Added

              157 Plays / / 0 Comments

              Clinical trials provide tomorrow’s medicine today, but many patients still seek clarity. Myeloma expert, Dr. Robert Orlowski addresses several of the most commonly asked questions from myeloma patients interested in participating in clinical trials. Will I receive a placebo? How might this drug be beneficial and what will it cost? Dr. Orlowski explains.

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              • Phone Caregiver and Cancer Fighter Meet for the First Time - Charlotte Gorelick & Janice Duplessis

                34:34

                from Just So You Know / Added

                After spending four years talking on the phone after being paired by CanCare, an organization that pairs survivor mentors with cancer patients, Charlotte and Janice meet for the first time at the Together in Hope Conference for Brain Tumor Patients at MD Anderson. Having had cancer four times (breast, lung and brain), Charlotte advised and supported Janice throughout her treatment for metastatic brain tumor, which she discovered in 2007 after having had breast cancer in the year 2000. Throughout this video, Charlotte and Janice conclude “we women are very strong.” Recalling their individual experiences they suggest to prospective patients not to “hide your cancer, but tell people about it” and address the importance of having a good caregiver (“it’s amazing what you learn when you’re sick – who’s there for you.”)

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                • "Baking Brownies" - Short Clip

                  02:31

                  from Just So You Know / Added

                  - Valerie Steele

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                  • Improving Outcomes in Newly Diagnosed and Relapsed Myeloma Patients

                    03:32

                    from Patient Power / Added

                    227 Plays / / 0 Comments

                    Myeloma expert, Dr. Robert Orlowski discusses attacking myeloma through combination therapy to sustain deeper remissions among the newly diagnosed and those with relapsed disease. Dr. Orlowski comments on the controversy surrounding myeloma treatment approaches, including utilizing more powerful regimens earlier in treatment.

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                    • Advances in Treatment Options and Diagnostics for Multiple Myeloma

                      01:37

                      from Patient Power / Added

                      595 Plays / / 0 Comments

                      The world of multiple myeloma continues to evolve. While there is an increase of treatment options, there is also an increase of confusion among patients about what medication should be used when and in what combination and sequence. Joining us today to help explain the latest treatment and diagnostic news is world renowned myeloma expert, Robert Orlowski from MD Anderson in Houston. Watch Now.

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