1. 01.11.17 CF QI Timeliness Webinar_Utah NBS

    01:02:12

    from APHL Added 4 0 0

    NewSTEPs 360 is pleased to announce an ongoing series of bimonthly webinars to discuss strategies for implementation of quality improvement initiatives to assure timely newborn screening in cystic…

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    • NBS Pilot Study Announcement 2016-05

      08:24

      from MLD Foundation Added 9 0 0

      NBS Pilot Study Announcement 2016-05

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      • Treating Sickle Cell Disease

        01:40

        from Lee Health Added 55 0 0

        It’s a genetic condition that can’t be cured. Each year nearly 200,000 people are born with sickle cell disease. Health experts say there are ways to find out if you are at risk for having…

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        • Miracle for Max - Make change for Krabbe Disease

          14:38

          from Allison Barnett Added 1,153 1 0

          Max Barnett lived a full life. His legacy will allow us to continue to fight for Krabbe to be added to newborn screening in every state but especially Arizona. "It's not the years in your…

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          • 8.3 Orsini

            30:43

            from Omar Sherbini Added 8 0 0

            Orsini - New York State’s Experience with GLD and ALD

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            • 8.1 Kohlschuetter

              16:37

              from Omar Sherbini Added 19 0 0

              Kohlschuetter - Changing Attitudes Towards Newborn Screening

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              • 8.4 Suhr

                23:58

                from Omar Sherbini Added 1 0 0

                Suhr - Newborn Screening Policy

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                • Newborn Screening Policy - Leukodystrophy Conference - May 2016

                  23:58

                  from MLD Foundation Added 25 0 0

                  Dean Suhr's presentation "Newborn Screening Policy" at the Emerging and Translational Biology of Leukodystrophies conference in Baltimore, Maryland at the Kennedy Krieger Institute…

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                  • NBS Pilot Study Announcement 2016-05

                    03:07

                    from MLD Foundation Added 46 0 0

                    NBS Pilot Study Announcement 2016-05

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                    • MLDconv - Newborn Screening Update 2015-07

                      12:01

                      from MLD Foundation Added 1 0 0

                      Newborn Screening Update, Dr. Gelb

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