1. Saving Ryan


    from UT Southwestern Added 405 0 0

    When Ryan Dant’s parents took the spirited and seemingly healthy toddler to his 3-year checkup, they were shocked to hear he had only a few years left to live. Ryan was diagnosed with a rare…

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    • Finn


      from Caravan Added 30.2K 949 39

      A huge thanks to everyone who has stepped into this story with me and my family. I'm forever grateful. -Jon http://projectalive.org

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      • DTRF 2016 Patient Meeting Presentation - Dr. Raffi Avedian, Stanford University


        from DTRF Added 217 0 0

        Dr. Raffi Avedian speaks about a novel non-invasive type of desmoid tumor treatment called "HIFU" (high intensity focus ultrasound). This is Dr. Avedian's full presentation from the…

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        • NC Teen with Rare Disease Graduates High School


          from HIS Radio Added

          Khye Jessup was only expected to live into his teens so his mom wasn't sure if she'd ever see him graduate high school. He has a rare disease. Source: http://www.wltx.com/life/heartwarming/nc-teen-with-rare-disease-beats-the-odds-graduates-high-school/447888006

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          • Tess Is Not Alone: A USP7 Story


            from Bo Bigelow Added 1 0 0

            When Tess was diagnosed with a rare mutation in her USP7 gene, her parents thought she was the only one in the world.

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            • Fita Alta Madness 2


              from Fita Alta Madness Added 608 1 0

              15 juliol 2017, La Fita Alta, Sidamon www.fitaaltamadness.wordpress.com . Molant bastant des de 2016 .

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              • The Adam Boys


                from Megan Farmer Added 7 0 0

                There are five people in the United States that live with Jansen's Metaphyseal Chondrodysplasia. Neena Nizar and her two sons, Arshaan and Jahan, account for three of the five confirmed cases.…

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                • To Choose A Path


                  from Caravan Added 1,777 136 8

                  To learn more visit: http://projectalive.org #projectalive Hunter Syndrome (MPS II) is a rare genetic disease that affects less than 500 boys in the United States. Boys with Hunter syndrome are…

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                  • In Crystal Skin


                    from In Crystal Skin Added 170K 434 26

                    In Bogotá, Colombia, a charismatic eleven year old named Maria Alejandra struggles to maintain a normal childhood despite the limitations imposed by a rare skin disease. Conflict between mother…

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                    • Saving Lulu's Eyes


                      from Stat News Added 47 1 0

                      Lulu Tang was a baby when she diagnosed with retinoblastoma, a rare form of eye cancer. Doctors in China wanted to remove her eyes. Instead, parents, both blind themselves, brought her to New York…

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                      Tags are keywords that describe videos. For example, a video of your Hawaiian vacation might be tagged with "Hawaii," "beach," "surfing," and "sunburn."