1. Saving Ryan

    04:54

    from UT Southwestern Added 405 0 0

    When Ryan Dant’s parents took the spirited and seemingly healthy toddler to his 3-year checkup, they were shocked to hear he had only a few years left to live. Ryan was diagnosed with a rare…

    + More details
    • Finn

      07:59

      from Caravan Added 30.2K 949 39

      A huge thanks to everyone who has stepped into this story with me and my family. I'm forever grateful. -Jon http://projectalive.org

      + More details
      • DTRF 2016 Patient Meeting Presentation - Dr. Raffi Avedian, Stanford University

        34:26

        from DTRF Added 217 0 0

        Dr. Raffi Avedian speaks about a novel non-invasive type of desmoid tumor treatment called "HIFU" (high intensity focus ultrasound). This is Dr. Avedian's full presentation from the…

        + More details
        • NC Teen with Rare Disease Graduates High School

          02:15

          from HIS Radio Added

          Khye Jessup was only expected to live into his teens so his mom wasn't sure if she'd ever see him graduate high school. He has a rare disease. Source: http://www.wltx.com/life/heartwarming/nc-teen-with-rare-disease-beats-the-odds-graduates-high-school/447888006

          + More details
          • Tess Is Not Alone: A USP7 Story

            03:05

            from Bo Bigelow Added 1 0 0

            When Tess was diagnosed with a rare mutation in her USP7 gene, her parents thought she was the only one in the world.

            + More details
            • Fita Alta Madness 2

              01:07

              from Fita Alta Madness Added 608 1 0

              15 juliol 2017, La Fita Alta, Sidamon www.fitaaltamadness.wordpress.com . Molant bastant des de 2016 .

              + More details
              • The Adam Boys

                05:46

                from Megan Farmer Added 7 0 0

                There are five people in the United States that live with Jansen's Metaphyseal Chondrodysplasia. Neena Nizar and her two sons, Arshaan and Jahan, account for three of the five confirmed cases.…

                + More details
                • To Choose A Path

                  07:30

                  from Caravan Added 1,777 136 8

                  To learn more visit: http://projectalive.org #projectalive Hunter Syndrome (MPS II) is a rare genetic disease that affects less than 500 boys in the United States. Boys with Hunter syndrome are…

                  + More details
                  • In Crystal Skin

                    18:02

                    from In Crystal Skin Added 170K 434 26

                    In Bogotá, Colombia, a charismatic eleven year old named Maria Alejandra struggles to maintain a normal childhood despite the limitations imposed by a rare skin disease. Conflict between mother…

                    + More details
                    • Saving Lulu's Eyes

                      04:39

                      from Stat News Added 47 1 0

                      Lulu Tang was a baby when she diagnosed with retinoblastoma, a rare form of eye cancer. Doctors in China wanted to remove her eyes. Instead, parents, both blind themselves, brought her to New York…

                      + More details

                      What are Tags?

                      Tags

                      Tags are keywords that describe videos. For example, a video of your Hawaiian vacation might be tagged with "Hawaii," "beach," "surfing," and "sunburn."